The Hunter’s Hope Foundation Leukodystrophy Care Network (LCN) was established in 2015. It is a network of medical providers, hospitals, Leukodystrophy organizations and affected families. Our goal is to provide innovative therapies, treatment options, expert care and information to families affected by these diseases. The LCN was created for you and other families affected by Leukodystrophy. Your input is invaluable in helping us continue to improve and grow the LCN.

Please provide the information below. You must be the parent or legal guardian of the patient, or you are the patient.      

Thank you for participating in the survey. Your feedback is essential to ensure that our LCN Care Centers meet the highest standards of care. Please answer the following questions based on your experience with your LCN Center.

* All identifying information is for internal purposes only and will not be shared with LCN Center staff.