Family Registration Form

| Resume a previously saved form
Resume Later

In order to be able to resume this form later, please enter your email and choose a password.

Password must contain the following:
  • 12 Characters
  • 1 Uppercase letter
  • 1 Lowercase letter
  • 1 Number
  • 1 Special character

Page 1

Parent or Legal Guardian

Please provide the information below for the person filling out this form. You must be the parent or legal guardian of the affected person.      





Name & Contact Information (Parent or Legal Guardian continued)



MM/DD/YYYY








Page 2

Family Member Information

Please provide the name and other information below for your family member(s).
At the end of this section, you will be able to add more family members by clicking the link 'Add Another Family Member.'







MM/DD/YYYY



MM/DD/YYYY

Affected Individual

MM/DD/YYYY

Symptoms & Treatment




Newborn Screening
Please help us in our mission to continually improve the medical care provided to individuals affected by leukodystrophies by answering the following questions:

MM/DD/YYYY



Disease Altering Treatment



MM/DD/YYYY


Almost Done








Save my progress and resume later | Resume a previously saved form

Contact Information